<div class="clin_cts">
<h2>발생자 수(2023년)</h2>
<h4 class="jjung">전체 발생자 수</h4>
<ul class="chart_area_out mgt05">
<li class="chart_area_in wid_1">
<p>전체<em>(<em>62,420명</em>)</em></p>
</li>
<!-- //chart_area_in -->
<li class="chart_area_in wid_2">
<p>남자<em>(<em>31,614</em>, 50.6%)</em></p>
</li>
<!-- //chart_area_in -->
<li class="chart_area_in wid_3">
<p>여자<em>(<em>30,806</em>, 49.4%)</em></p>
</li>
<!-- //chart_area_in -->
</ul>
<!-- //chart_area_out -->
<h4 class="jjung">다빈도 질환(발생자 수 200명 초과)에서의 발생자 수</h4>
<div class="chart_area_out mgt05">
<div class="chart_area_in half">
<h5 class="tit">지역별 발생자 수(62,420명)</h5>
<div class="graph">
<ul class="graph_he_ad">
<li>
<dl class="grp_wrap">
<dt>서울</dt>
<dd>
<div class="g_col_blue grp_list" style="width:49.56%"> </div>
<span>12,375</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>인천</dt>
<dd>
<div class="g_col_blue grp_list" style="width:14.88%"> </div>
<span>3,716</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>경기</dt>
<dd>
<div class="g_col_blue grp_list" style="width:66.61%"> </div>
<span>16,631</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>강원</dt>
<dd>
<div class="g_col_blue grp_list" style="width:7.51%"> </div>
<span>1,875</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>충남</dt>
<dd>
<div class="g_col_blue grp_list" style="width:10.23%"> </div>
<span>2,553</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>충북</dt>
<dd>
<div class="g_col_blue grp_list" style="width:7.43%"> </div>
<span>1,855</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>대전</dt>
<dd>
<div class="g_col_blue grp_list" style="width:6.61%"> </div>
<span>1,651</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>세종</dt>
<dd>
<div class="g_col_blue grp_list" style="width:1.59%"> </div>
<span>398</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>경남</dt>
<dd>
<div class="g_col_blue grp_list" style="width:14.96%"> </div>
<span>3,736</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>경북</dt>
<dd>
<div class="g_col_blue grp_list" style="width:12.23%"> </div>
<span>3,053</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>부산</dt>
<dd>
<div class="g_col_blue grp_list" style="width:16.33%"> </div>
<span>4,078</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>대구</dt>
<dd>
<div class="g_col_blue grp_list" style="width:11.63%"> </div>
<span>2,903</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>울산</dt>
<dd>
<div class="g_col_blue grp_list" style="width:4.49%"> </div>
<span>1,121</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>전남</dt>
<dd>
<div class="g_col_blue grp_list" style="width:7.87%"> </div>
<span>1,965</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>전북</dt>
<dd>
<div class="g_col_blue grp_list" style="width:8.16%"> </div>
<span>2,037</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>광주</dt>
<dd>
<div class="g_col_blue grp_list" style="width:6.31%"> </div>
<span>1,575</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>제주</dt>
<dd>
<div class="g_col_blue grp_list" style="width:3.35%"> </div>
<span>837</span></dd>
</dl>
</li>
</ul>
</div>
<p class="mk_ref">권역을 알수 없는 경우 : 0.019%</p>
</div>
<!-- //chart_area_in -->
<div class="chart_area_in half">
<h5 class="tit">연령군별 발생자 수(62,420명)</h5>
<div class="graph">
<ul class="graph_he_ad">
<li>
<dl class="grp_wrap">
<dt>1세 미만</dt>
<dd>
<div class="g_col_blue grp_list" style="width:6.44%"> </div>
<span>1,608</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>1 ~ 9 세</dt>
<dd>
<div class="g_col_blue grp_list" style="width:10.59%"> </div>
<span>2,645</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>10 ~ 19세</dt>
<dd>
<div class="g_col_blue grp_list" style="width:15.42%"> </div>
<span>3,850</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>20 ~ 29세</dt>
<dd>
<div class="g_col_blue grp_list" style="width:20.55%"> </div>
<span>5,132</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>30 ~ 39세</dt>
<dd>
<div class="g_col_blue grp_list" style="width:23.92%"> </div>
<span>5,973</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>40 ~ 49세</dt>
<dd>
<div class="g_col_blue grp_list" style="width:31.50%"> </div>
<span>7,865</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>50 ~ 59세</dt>
<dd>
<div class="g_col_blue grp_list" style="width:40.54%"> </div>
<span>10,123</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>60 ~ 69세</dt>
<dd>
<div class="g_col_blue grp_list" style="width:48.37%"> </div>
<span>12,078</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>70 ~ 79세</dt>
<dd>
<div class="g_col_blue grp_list" style="width:34.08%"> </div>
<span>8,509</span></dd>
</dl>
</li>
<li>
<dl class="grp_wrap">
<dt>80세 이상</dt>
<dd>
<div class="g_col_blue grp_list" style="width:18.57%"> </div>
<span>4,637</span></dd>
</dl>
</li>
</ul>
</div>
<!-- //graph --></div>
<!-- //chart_area_in --></div>
<!-- //chart_area_out -->
<h2>사망자 수(2023년)</h2>
<div class="chart_area_out">
<div class="chart_area_in">
<h5 class="tit">성별 연령군별 사망자 수(2,093명)</h5>
<p><img alt="희귀질환 사망자 수 그래프 1세미만 남 20, 여 22, 합계 42, 1~9세 남 7, 여 4, 합계 11, 10~19세 남 2, 여 5, 합계 7, 20~29세 남 12, 여 10, 합계 22, 30~39세 남 21, 여 18, 합계 39, 40~49세 남 34, 여 30, 합계 64, 50~59세 남 98, 여 48, 합계 146, 60~69세 남 262, 여 106, 합계 368, 70~79세 남 409, 여 210, 합계 619, 80 세이상 남 415, 여 360, 합계 775" src="/cdchelp/img/contents/info_img251031_1.png" style="width:640px;" /><br />
<a class="btn btn_bl new" href="/cdchelp/img/contents/info_img251031_1.png" target="_blank" title="새창으로 열림"><em>큰 이미지로 보기</em></a></p>
</div>
</div>
<div class="border_none calc_tit">
<h2>급여현황(2023년)</h2>
<span>(단위 : 건, 일, 만원)</span></div>
<!-- //calc_tit -->
<table class="listT2">
<caption>진료실인원수,1인당 평균값,청구건수,내원(입원)일수,급여일수,진료비,계,급여비,본인부담금</caption>
<colgroup>
<col style="width:15%" />
<col style="width:5%" />
<col style="width:20%" />
<col style="width:20%" />
<col style="width:20%" />
<col style="width:20%" />
</colgroup>
<thead>
<tr>
<th colspan="3" rowspan="2">구분</th>
<th colspan="3">계</th>
</tr>
<tr>
<th>전체</th>
<th>건강보험</th>
<th>의료급여</th>
</tr>
</thead>
<tbody>
<tr>
<td colspan="3">진료 실인원수</td>
<td>60,050</td>
<td>56,004</td>
<td>4,046</td>
</tr>
<tr>
<td rowspan="6">1인당 평균값</td>
<td colspan="2">청구건수</td>
<td>15</td>
<td>15</td>
<td>12</td>
</tr>
<tr>
<td colspan="2">내원(입원)일수</td>
<td>19</td>
<td>19</td>
<td>28</td>
</tr>
<tr>
<td colspan="2">급여일수</td>
<td>222</td>
<td>225</td>
<td>187</td>
</tr>
<tr>
<td rowspan="3">진료비<br />
*</td>
<td>계</td>
<td>652</td>
<td>637</td>
<td>861</td>
</tr>
<tr>
<td>급여비</td>
<td>584</td>
<td>566</td>
<td>832</td>
</tr>
<tr>
<td>본인부담금</td>
<td>68</td>
<td>71</td>
<td>30</td>
</tr>
</tbody>
</table>
<p>* 자료원인 건강보험심사평가원에서 심사결정 이후 비용으로 산정</p>
<h2>진료내역 주요항목별 요양급여비용 현황(2023년)</h2>
<div class="chart_area_out">
<div class="txt_r">(단위 : 백만원)</div>
<div class="chart_area_in">
<div class="circle_st">
<p><em>합계 409,298백만원</em> <img alt="진찰료 93,522(22.8%),입원료 65,952(16.1%),투약료 9,254(2.3%),주사료 69,101(16.9%),처치 및 수술료 28,700(7.0%),검사료 60,966(14.9%),그 외* 81,804(20.0%)" src="/cdchelp/img/contents/info_img251031_2.png" /></p>
<div class="graph_table">
<ul>
<li>진찰료</li>
<li>입원료</li>
<li>투약료</li>
<li>주사료</li>
<li>처치 및 수술료</li>
<li>검사료</li>
<li>그외**</li>
</ul>
</div>
<!-- //graph_table --></div>
<span class="jjumg mk_ref">자료원인 건강보험심사평가원에서 심사결정 이전 비용으로 산정</span>
<p class="jjumg1 mk_ref">마취료, 이학요법료, 정신요법료, 영상 및 방사선 치료료 등</p>
</div>
<!-- //chart_area_in --></div>
<h2>통계 연보</h2>
<table class="rowT st2">
<caption>간행물명,ISSN,최초 발행년도,발행처,편집처</caption>
<colgroup>
<col style="width:12%" />
<col style="width:auto" />
<col style="width:12%" />
<col style="width:auto" />
<col style="width:15%" />
<col style="width:auto" />
</colgroup>
<tbody>
<tr>
<th scope="row">간행물명</th>
<td>희귀질환자 통계 연보</td>
<th scope="row">ISSN</th>
<td>2765-1371</td>
<th scope="row">최초 발행년도</th>
<td>2020년</td>
</tr>
<tr>
<th scope="row">발행처</th>
<td>질병관리청</td>
<th scope="row">편집처</th>
<td colspan="3">만성질환관리국 희귀질환관리과</td>
</tr>
</tbody>
</table>
<table class="listT mgt20 st2">
<caption>차수,작성년도,작성기간,발행일,파일 다운로드</caption>
<colgroup>
<col style="width:12%" />
<col style="width:12%" />
<col style="width:auto" />
<col style="width:12%" />
<col style="width:12%" />
<col style="width:12%" />
</colgroup>
<thead>
<tr>
<th rowspan="2" scope="col">차수</th>
<th rowspan="2" scope="col">작성년도</th>
<th rowspan="2" scope="col">작성기간</th>
<th rowspan="2" scope="col">발행일</th>
<th colspan="2" scope="col">파일 다운로드</th>
</tr>
<tr>
<th scope="col">연보</th>
<th scope="col">결과표</th>
</tr>
</thead>
<tbody>
<tr>
<td class="mobile_first">제1차</td>
<td><span class="mobile tit">작성년도</span> <span class="mobile_txt">2019년</span></td>
<td><span class="mobile tit">작성기간</span> <span class="mobile_txt">2019.1.1.~ 2019.12.31.<br />
(2019년 발생통계)</span></td>
<td><span class="mobile tit">발행일</span> <span class="mobile_txt">2020. 12. 30.</span></td>
<td><span class="mobile tit">연보파일다운</span> <span class="mobile_txt"><button class="btn_bl btn_down" onclick="javascript:gfn_cdcFileDown('20201229131222077789633',nTime);" type="button">PDF</button></span></td>
<td><span class="mobile tit">결과표파일다운</span> <span class="mobile_txt"><button class="btn_bl btn_down" onclick="javascript:gfn_cdcFileDown('202510291003507622108751',nTime);" type="button">엑셀</button></span></td>
</tr>
<tr>
<td class="mobile_first">제2차</td>
<td><span class="mobile tit">작성년도</span> <span class="mobile_txt">2020년</span></td>
<td><span class="mobile tit">작성기간</span> <span class="mobile_txt">2020.1.1.~ 2020.12.31.<br />
(2019년 사망·진료이용통계, 2020년 발생통계)</span></td>
<td><span class="mobile tit">발행일</span> <span class="mobile_txt">2021. 12. 30.</span></td>
<td><span class="mobile tit">연보파일다운</span> <span class="mobile_txt"><button class="btn_bl btn_down" onclick="javascript:gfn_cdcFileDown('20211223155546273969118',nTime);" type="button">PDF</button></span></td>
<td><span class="mobile tit">결과표파일다운</span> <span class="mobile_txt"><button class="btn_bl btn_down" onclick="javascript:gfn_cdcFileDown('202510291003507622108752',nTime);" type="button">엑셀</button></span></td>
</tr>
<tr>
<td class="mobile_first">제3차</td>
<td><span class="mobile tit">작성년도</span> <span class="mobile_txt">2020년</span></td>
<td><span class="mobile tit">작성기간</span> <span class="mobile_txt">2020.1.1.~ 2020.12.31.<br />
(2020년 발생·사망·진료이용통계)</span></td>
<td><span class="mobile tit">발행일</span> <span class="mobile_txt">2022. 11. 30.</span></td>
<td><span class="mobile tit">연보파일다운</span> <span class="mobile_txt"><button class="btn_bl btn_down" onclick="javascript:gfn_cdcFileDown('202211291011399551136414',nTime);" type="button">PDF</button></span></td>
<td><span class="mobile tit">결과표파일다운</span> <span class="mobile_txt"><button class="btn_bl btn_down" onclick="javascript:gfn_cdcFileDown('202510291003507622108753',nTime);" type="button">엑셀</button></span></td>
</tr>
<tr>
<td class="mobile_first">제4차</td>
<td><span class="mobile tit">작성년도</span> <span class="mobile_txt">2021년</span></td>
<td><span class="mobile tit">작성기간</span> <span class="mobile_txt">2021.1.1.~ 2021.12.31.<br />
(2021년 발생·사망·진료이용통계)</span></td>
<td><span class="mobile tit">발행일</span> <span class="mobile_txt">2023. 11. 30.</span></td>
<td><span class="mobile tit">연보파일다운</span> <span class="mobile_txt"><button class="btn_bl btn_down" onclick="javascript:gfn_cdcFileDown('202311300911546151332145',nTime);" type="button">PDF</button></span></td>
<td><span class="mobile tit">결과표파일다운</span> <span class="mobile_txt"><button class="btn_bl btn_down" onclick="javascript:gfn_cdcFileDown('202510291003507622108754',nTime);" type="button">엑셀</button></span></td>
</tr>
<tr>
<td class="mobile_first">제5차</td>
<td><span class="mobile tit">작성년도</span> <span class="mobile_txt">2022년</span></td>
<td><span class="mobile tit">작성기간</span> <span class="mobile_txt">2022.1.1.~ 2022.12.31.<br />
(2022년 발생·사망·진료이용통계)</span></td>
<td><span class="mobile tit">발행일</span> <span class="mobile_txt">2024. 11. 29.</span></td>
<td><span class="mobile tit">연보파일다운</span> <span class="mobile_txt"><button class="btn_bl btn_down" onclick="javascript:gfn_cdcFileDown('202411290905485211492322',nTime);" type="button">PDF</button></span></td>
<td><span class="mobile tit">결과표파일다운</span> <span class="mobile_txt"><button class="btn_bl btn_down" onclick="javascript:gfn_cdcFileDown('202510291003507622108755',nTime);" type="button">엑셀</button></span></td>
</tr>
<tr>
<td class="mobile_first">제6차</td>
<td><span class="mobile tit">작성년도</span> <span class="mobile_txt">2023년</span></td>
<td><span class="mobile tit">작성기간</span> <span class="mobile_txt">2023.1.1.~ 2023.12.31.<br />
(2023년 발생·사망·진료이용통계)</span></td>
<td><span class="mobile tit">발행일</span> <span class="mobile_txt">2025. 10. 31.</span></td>
<td><span class="mobile tit">연보파일다운</span> <span class="mobile_txt"><button class="btn_bl btn_down" onclick="javascript:gfn_cdcFileDown('202510290957460332108724',nTime);" type="button">PDF</button></span></td>
<td><span class="mobile tit">결과표파일다운</span> <span class="mobile_txt"><button class="btn_bl btn_down" onclick="javascript:gfn_cdcFileDown('202510291003507622108756',nTime);" type="button">엑셀</button></span></td>
</tr>
</tbody>
</table>
<p class="mk_ref">결과표는 <a href="https://kosis.kr/" rel="noopener noreferrer" target="_blank" title="새 창으로 이동">통계청 KOSIS 국가통계포털</a>에서도 확인 가능</p>
</div>
