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홈 권역별 전문기관 행사일정

권역별 전문기관

행사일정

자조모임 2026년 아주대학교병원 경인권역 희귀질환 전문기관 자조모임(디자인 비누 만들기)

행사기간 - 2026-02-12 ~ 2026-02-12
작성일 - 2026-02-04
조회수 - 431

<span style="font-size:small"><span style="color:#222222"><span style="font-family:Arial,Helvetica,sans-serif"><span style="font-style:normal"><span style="font-variant-ligatures:normal"><span style="font-variant-caps:normal"><span style="font-weight:400"><span style="letter-spacing:normal"><span style="orphans:2"><span style="text-transform:none"><span style="widows:2"><span style="word-spacing:0px"><span style="white-space:normal"><span style="background-color:#ffffff"><span style="text-decoration-thickness:initial"><span style="text-decoration-style:initial"><span style="text-decoration-color:initial"><span style="font-variant-numeric:inherit"><span style="font-variant-east-asian:inherit"><span style="font-stretch:inherit"><span style="line-height:inherit"><span style="background-image:none"><span style="background-position:initial"><span style="background-size:initial"><span style="background-repeat:initial"><span style="background-origin:initial"><span style="background-clip:initial"><span style="font-family:comic sans ms,sans-serif"><span style="color:#000000"><span lang="EN-US" style="letter-spacing:0pt">2026</span>년 아주대학교병원 경인권역 희귀질환 전문기관 자조모임</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><br /> <br /> <span style="font-size:small"><span style="color:#222222"><span style="font-family:Arial,Helvetica,sans-serif"><span style="font-style:normal"><span style="font-variant-ligatures:normal"><span style="font-variant-caps:normal"><span style="font-weight:400"><span style="letter-spacing:normal"><span style="orphans:2"><span style="text-transform:none"><span style="widows:2"><span style="word-spacing:0px"><span style="white-space:normal"><span style="background-color:#ffffff"><span style="text-decoration-thickness:initial"><span style="text-decoration-style:initial"><span style="text-decoration-color:initial"><span style="font-variant-numeric:inherit"><span style="font-variant-east-asian:inherit"><span style="font-stretch:inherit"><span style="line-height:inherit"><span style="background-image:none"><span style="background-position:initial"><span style="background-size:initial"><span style="background-repeat:initial"><span style="background-origin:initial"><span style="background-clip:initial"><span style="font-family:comic sans ms,sans-serif"><span style="color:#000000"><<span style="text-align:center">프라더</span><span lang="EN-US" style="letter-spacing:0pt; text-align:center">-</span><span style="text-align:center">윌리 증후군 환자와 부모를 위한 자조모임</span><span lang="EN-US" style="letter-spacing:0pt; text-align:center">(</span><span style="text-align:center">디자인 비누 만들기</span><span lang="EN-US" style="letter-spacing:0pt; text-align:center">)</span>></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><br />   <div style="-webkit-text-stroke-width:0px; border:0px; margin-bottom:0px; margin-left:0px; margin-right:0px; margin-top:0px; padding:0px; text-align:start"><span style="font-size:small"><span style="color:#222222"><span style="font-family:Arial,Helvetica,sans-serif"><span style="font-style:normal"><span style="font-variant-ligatures:normal"><span style="font-variant-caps:normal"><span style="font-weight:400"><span style="letter-spacing:normal"><span style="orphans:2"><span style="text-transform:none"><span style="widows:2"><span style="word-spacing:0px"><span style="white-space:normal"><span style="background-color:#ffffff"><span style="text-decoration-thickness:initial"><span style="text-decoration-style:initial"><span style="text-decoration-color:initial"><span style="font-variant-numeric:inherit"><span style="font-variant-east-asian:inherit"><span style="font-stretch:inherit"><span style="line-height:inherit"><span style="background-image:none"><span style="background-position:initial"><span style="background-size:initial"><span style="background-repeat:initial"><span style="background-origin:initial"><span style="background-clip:initial"></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span> <div style="border:0px; margin-bottom:0px; margin-left:0px; margin-right:0px; margin-top:0px; padding:0px"><span style="font-size:small"><span style="color:#222222"><span style="font-family:Arial,Helvetica,sans-serif"><span style="font-style:normal"><span style="font-variant-ligatures:normal"><span style="font-variant-caps:normal"><span style="font-weight:400"><span style="letter-spacing:normal"><span style="orphans:2"><span style="text-transform:none"><span style="widows:2"><span style="word-spacing:0px"><span style="white-space:normal"><span style="background-color:#ffffff"><span style="text-decoration-thickness:initial"><span style="text-decoration-style:initial"><span style="text-decoration-color:initial"><span style="font-variant-numeric:inherit"><span style="font-variant-east-asian:inherit"><span style="font-stretch:inherit"><span style="line-height:inherit"><span style="background-image:none"><span style="background-position:initial"><span style="background-size:initial"><span style="background-repeat:initial"><span style="background-origin:initial"><span style="background-clip:initial"><span style="background:none"><span style="font-style:inherit"><span style="font-variant:inherit"><span style="font-stretch:inherit"><span style="line-height:inherit"><span style="font-kerning:inherit"><span style="font-feature-settings:inherit"><span style="font-family:comic sans ms,sans-serif"><span style="color:#000000">일 시 <span lang="EN-US" style="letter-spacing:0pt">: 2026</span>년 <span lang="EN-US" style="letter-spacing:0pt">2</span>월 <span lang="EN-US" style="letter-spacing:0pt">12</span>일 목요일 오후 <span lang="EN-US" style="letter-spacing:0pt">2</span>시 <span lang="EN-US" style="letter-spacing:0pt">30</span>분 <span lang="EN-US" style="letter-spacing:0pt">~ 4</span>시 <span lang="EN-US" style="letter-spacing:0pt">30</span>분</span></span><br /> <span style="font-family:comic sans ms,sans-serif"><span style="color:#000000">장 소 <span lang="EN-US" style="letter-spacing:0pt">: </span>아주대학교병원 웰빙센터 <span lang="EN-US" style="letter-spacing:0pt">6</span>층 회의실<span lang="EN-US" style="letter-spacing:0pt">1</span></span></span><br /> <span style="font-family:comic sans ms,sans-serif"><span style="color:#000000">대 상 <span lang="EN-US" style="letter-spacing:0pt">: </span>아주대학교병원 프라더<span lang="EN-US" style="letter-spacing:0pt">-</span>윌리 증후군 환자 및 가족</span></span><br /> <span style="font-family:comic sans ms,sans-serif"><span style="color:#000000"><span lang="EN-US" style="letter-spacing:0pt">(</span>유치부<span lang="EN-US" style="letter-spacing:0pt">~</span>초등학생 참여자는 보호자 동반 시에만 가능합니다<span lang="EN-US" style="letter-spacing:0pt">.)</span></span></span><br /> <span style="font-family:comic sans ms,sans-serif"><span style="color:#000000">사전등록 <span lang="EN-US" style="letter-spacing:0pt">: <a data-saferedirecturl="https://www.google.com/url?q=https://naver.me/Ge4K2scn&source=gmail&ust=1770270227367000&usg=AOvVaw35ruqUj_bNl3lo3EFhsVIm" href="https://naver.me/Ge4K2scn" style="color:#1155cc" target="_blank">https://naver.me/Ge4K2scn</a> </span>또는 <u><span lang="EN-US" style="letter-spacing:0pt">QR</span></u><u>코드로 신청</u></span></span><br /> <span style="font-family:comic sans ms,sans-serif"><span style="color:#000000">주 최 <span lang="EN-US" style="letter-spacing:0pt">: </span>아주대학교병원 경인권역 희귀질환 전문기관</span></span><br /> <span style="font-family:comic sans ms,sans-serif"><span style="color:#000000">후 원 <span lang="EN-US" style="letter-spacing:0pt">: </span>질병관리청<span lang="EN-US" style="letter-spacing:0pt">, </span>아주대학교병원</span></span><br /> <span style="font-family:comic sans ms,sans-serif"><span style="color:#000000">문 의 <span lang="EN-US" style="letter-spacing:0pt">: 031-219-7148, 010-9668-7148</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><br /> <span style="font-size:small"><span style="color:#222222"><span style="font-family:Arial,Helvetica,sans-serif"><span style="font-style:normal"><span style="font-variant-ligatures:normal"><span style="font-variant-caps:normal"><span style="font-weight:400"><span style="letter-spacing:normal"><span style="orphans:2"><span style="text-transform:none"><span style="widows:2"><span style="word-spacing:0px"><span style="white-space:normal"><span style="background-color:#ffffff"><span style="text-decoration-thickness:initial"><span style="text-decoration-style:initial"><span style="text-decoration-color:initial"><span style="font-variant-numeric:inherit"><span style="font-variant-east-asian:inherit"><span style="font-stretch:inherit"><span style="line-height:inherit"><span style="background-image:none"><span style="background-position:initial"><span style="background-size:initial"><span style="background-repeat:initial"><span style="background-origin:initial"><span style="background-clip:initial"><span style="background:none"><span style="font-style:inherit"><span style="font-variant:inherit"><span style="font-stretch:inherit"><span style="line-height:inherit"><span style="font-kerning:inherit"><span style="font-feature-settings:inherit"><span style="font-family:comic sans ms,sans-serif"><span style="color:#000000"><span lang="EN-US" style="letter-spacing:0pt">* </span>참가비는 무료이며 사전등록자만 참여가능합니다<span lang="EN-US" style="letter-spacing:0pt">.</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></div> </div>

이전글: 2026년 희귀질환 극복의 날 홍보행사

다음글: 2026년 아주대학교병원 경인권역 희귀질환 전문기관 자조모임(달콤새콤 생크림 케이크 만들기)

본 홈페이지에서 제공하는 내용은 참고사항일 뿐 게시물에 대한 법적 책임은 없음을 안내드립니다. 자세한 내용은 전문가와 상담하시기 바랍니다.

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