질병관리청 희귀질환 헬프라인

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세미나 2020 충남권역 희귀질환 거점센터 온라인 심포지엄

행사기간 - 2020-12-18 ~ 2020-12-18
작성일 - 2020-12-08
조회수 - 1279

2020 충남권역 희귀질환 거점센터 온라인 심포지엄   회의 ID Zoom : 664 693 8983 2020년 12월 18일 금요일 오후 14:55 ~ 17:30 - 프로그램 <table border="1" cellspacing="0" style="border-collapse:collapse; border-image:none; border:0.28pt solid #000000; table-layout:fixed"> <tbody> <tr> <td style="background-color:#f4dded; background:#f4dded; border-color:#000000 #000000 #000000 currentColor; border-style:solid solid double none; border-width:1.7pt 0.28pt 1.98pt medium; height:30.61pt; padding:1.41pt 5.1pt; width:99.41pt" valign="middle">시간</td> <td style="background-color:#f4dded; background:#f4dded; border-color:#000000; border-style:solid solid double; border-width:1.7pt 0.28pt 1.98pt; height:30.61pt; padding:1.41pt 5.1pt; width:229.44pt" valign="middle">세부내용</td> <td style="background-color:#f4dded; background:#f4dded; border-color:#000000 currentColor #000000 #000000; border-style:solid none double solid; border-width:1.7pt medium 1.98pt 0.28pt; height:30.61pt; padding:1.41pt 5.1pt; width:150.2pt" valign="middle">연자</td> </tr> <tr> <td style="border-color:#000000 #000000 #000000 currentColor; border-style:double solid solid none; border-width:1.98pt 0.28pt 0.28pt medium; height:19.29pt; padding:1.41pt 5.1pt; vertical-align:middle; width:99.41pt">14:55~15:00</td> <td style="border-color:#000000; border-style:double solid solid; border-width:1.98pt 0.28pt 0.28pt; height:19.29pt; padding:1.41pt 5.1pt; vertical-align:middle; width:229.44pt">■ 인사말</td> <td style="border-color:#000000 currentColor #000000 #000000; border-style:double none solid solid; border-width:1.98pt medium 0.28pt 0.28pt; height:19.29pt; padding:1.41pt 5.1pt; vertical-align:middle; width:150.2pt">충남권역 희귀질환 거점센터 임한혁 교수</td> </tr> <tr> <td colspan="2" style="border-color:#000000 #000000 #000000 currentColor; border-style:solid solid solid none; border-width:0.28pt 0.28pt 0.28pt medium; height:19.29pt; padding:1.41pt 5.1pt; vertical-align:middle; width:328.85pt">1부 희귀질환센터 국가사업</td> <td style="border-color:#000000 currentColor #000000 #000000; border-style:solid none solid solid; border-width:0.28pt medium 0.28pt 0.28pt; height:19.29pt; padding:1.41pt 5.1pt; vertical-align:middle; width:150.2pt">좌장 충남대학교병원 소아청소년과 길홍량 교수</td> </tr> <tr> <td style="border-color:#000000 #000000 #000000 currentColor; border-style:solid solid solid none; border-width:0.28pt 0.28pt 0.28pt medium; height:19.29pt; padding:1.41pt 5.1pt; vertical-align:middle; width:99.41pt">15:00~15:20</td> <td style="border-color:#000000; border-image:none; border-style:solid; border-width:0.28pt; height:19.29pt; padding:1.41pt 5.1pt; vertical-align:middle; width:229.44pt">희귀질환센터의 역할과 미진단 프로그램 </td> <td style="border-color:#000000 currentColor #000000 #000000; border-style:solid none solid solid; border-width:0.28pt medium 0.28pt 0.28pt; height:19.29pt; padding:1.41pt 5.1pt; vertical-align:middle; width:150.2pt">서울대학교병원 소아청소년과, 희귀질환 중앙지원센터 채종희 교수</td> </tr> <tr> <td style="border-color:#000000 #000000 #000000 currentColor; border-style:solid solid solid none; border-width:0.28pt 0.28pt 0.28pt medium; height:36.27pt; padding:1.41pt 5.1pt; vertical-align:middle; width:99.41pt">15:20~15:40</td> <td style="border-color:#000000; border-image:none; border-style:solid; border-width:0.28pt; height:36.27pt; padding:1.41pt 5.1pt; vertical-align:middle; width:229.44pt">국가바이오 빅데이터 사업소개 </td> <td style="border-color:#000000 currentColor #000000 #000000; border-style:solid none solid solid; border-width:0.28pt medium 0.28pt 0.28pt; height:36.27pt; padding:1.41pt 5.1pt; vertical-align:middle; width:150.2pt">충남권역 희귀질환 거점센터 임한혁 교수</td> </tr> <tr> <td colspan="2" style="border-color:#000000 #000000 #000000 currentColor; border-style:solid solid solid none; border-width:0.28pt 0.28pt 0.28pt medium; height:30.61pt; padding:1.41pt 5.1pt; vertical-align:middle; width:328.85pt">2부 희귀질환 환자의 최신치료 현황</td> <td style="border-color:#000000 currentColor #000000 #000000; border-style:solid none solid solid; border-width:0.28pt medium 0.28pt 0.28pt; height:30.61pt; padding:1.41pt 5.1pt; vertical-align:middle; width:150.2pt">좌장 충남대학교병원 소아청소년과 길홍량 교수</td> </tr> <tr> <td style="border-color:#000000 #000000 #000000 currentColor; border-style:solid solid solid none; border-width:0.28pt 0.28pt 0.28pt medium; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:99.41pt">15:40~16:05</td> <td style="border-color:#000000; border-image:none; border-style:solid; border-width:0.28pt; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:229.44pt">Spinal muscular atrophy의 nusinersen의 치료 경험</td> <td style="border-color:#000000 currentColor #000000 #000000; border-style:solid none solid solid; border-width:0.28pt medium 0.28pt 0.28pt; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:150.2pt">충북대학교병원 소아청소년과, 충북권역 희귀질환 거점센터 김존수 교수</td> </tr> <tr> <td style="border-color:#000000 #000000 #000000 currentColor; border-style:solid solid solid none; border-width:0.28pt 0.28pt 0.28pt medium; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:99.41pt">16:05~16:30</td> <td style="border-color:#000000; border-image:none; border-style:solid; border-width:0.28pt; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:229.44pt">Hypophosphatasia환자 의 국내 임상증례와 asfotase alfa 치료</td> <td style="border-color:#000000 currentColor #000000 #000000; border-style:solid none solid solid; border-width:0.28pt medium 0.28pt 0.28pt; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:150.2pt">삼성서울병원 소아청소년과 조성윤 교수</td> </tr> <tr> <td style="border-color:#000000 #000000 #000000 currentColor; border-style:solid solid solid none; border-width:0.28pt 0.28pt 0.28pt medium; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:99.41pt">16:330~16:55</td> <td style="border-color:#000000; border-image:none; border-style:solid; border-width:0.28pt; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:229.44pt">Niemann-Pick disease환자의 국내 임상증례와 치료</td> <td style="border-color:#000000 currentColor #000000 #000000; border-style:solid none solid solid; border-width:0.28pt medium 0.28pt 0.28pt; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:150.2pt">서울아산병원 소아청소년과, 의학유전학센터 이범희 교수</td> </tr> <tr> <td style="border-color:#000000 #000000 #000000 currentColor; border-style:solid solid solid none; border-width:0.28pt 0.28pt 0.28pt medium; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:99.41pt">16:55~17:20</td> <td style="border-color:#000000; border-image:none; border-style:solid; border-width:0.28pt; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:229.44pt">Hemophilia치료의 최신 지견</td> <td style="border-color:#000000 currentColor #000000 #000000; border-style:solid none solid solid; border-width:0.28pt medium 0.28pt 0.28pt; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:150.2pt">충남대학교병원 소아청소년과 임연정교수</td> </tr> <tr> <td style="border-color:#000000 #000000 #000000 currentColor; border-style:solid solid solid none; border-width:0.28pt 0.28pt 0.28pt medium; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:99.41pt">17:20~17:30</td> <td colspan="2" style="border-color:#000000 currentColor #000000 #000000; border-style:solid none solid solid; border-width:0.28pt medium 0.28pt 0.28pt; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:379.64pt">토의 (Q & A)</td> </tr> <tr> <td style="border-color:#000000 #000000 #000000 currentColor; border-style:solid solid solid none; border-width:0.28pt 0.28pt 0.28pt medium; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:99.41pt">17:30~</td> <td style="border-color:#000000; border-image:none; border-style:solid; border-width:0.28pt; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:229.44pt">맺음말</td> <td style="border-color:#000000 currentColor #000000 #000000; border-style:solid none solid solid; border-width:0.28pt medium 0.28pt 0.28pt; height:34.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:150.2pt">충남권역 희귀질환 거점센터 임한혁 교수</td> </tr> <tr> <td colspan="3" style="border-color:#000000 currentColor; border-style:solid none; border-width:0.28pt medium 1.7pt; height:27.77pt; padding:1.41pt 5.1pt; vertical-align:middle; width:479.05pt">주 최 : 충남권역 희귀질환 거점센터 후 원 : 질병관리청 희귀질환과 . 충남대학교병원 문 의 : 충남대학교 희귀질환센터 042-280-8439/6429</td> </tr> </tbody> </table> <div class="hwp_editor_board_content" data-hjsonver="1.0" data-jsonlen="58693" id="hwpEditorBoardContent"> </div>

이전글: 희귀질환 바로알기 캠페인 세번째 두드림(Do Dream)

다음글: 원내 희귀질환 NGS#26 컨퍼런스

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